https://www.hdlivin.org.uk/fundraisingeventsblank daily 0.75 2021-03-28 https://www.hdlivin.org.uk/fundraisingeventsblank/event-one-rank7 monthly 0.5 2021-03-21 https://www.hdlivin.org.uk/fundraisingeventsblank/event-two-mgnrf monthly 0.5 2021-03-28 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616704879980-JND8VUQEJB93RWNTSPX8/sir%2Bfi.jpg Fundraising/Events BLANK - Charity Golf Open - Sir Fix-a-lock Ltd @sirfixalock · Home security company https://www.sirfixalock.com/ 07540 998558 info@sirfixalock.com https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616704906207-FBFSR1DV37ZJTDA8WDGV/kaya.jpg Fundraising/Events BLANK - Charity Golf Open - Kaya Gallery @KayaGalleryltd · Art gallery http://www.kayagallery.co.uk/ Tel: 01752 267474 kayagalleryltd@gmail.com https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616706002191-E055LGTZ223040II6WHI/irs.jpg Fundraising/Events BLANK - Charity Golf Open - IRS - Inch Recycling Solutions @InchRecyclingSolutions · Local business http://www.irshub.uk/ 01752 946912 mark@irshub.uk https://www.hdlivin.org.uk/blog daily 0.75 2021-02-13 https://www.hdlivin.org.uk/blog/blog-post-two-266rc monthly 0.5 2021-03-28 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616336880776-Z8DLXY9QFFXVHARIBE9Z/Walk.jpg Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616336948706-57DO09BRHC4IOPWW34WE/day+0.jpg Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616337414167-6FDKHYYHHOZSXW1DE3W0/IMG_0113.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616337419389-E8D2WY86OJ27QTZ5S1JA/day1.jpg Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616337436395-742RKUFAFE3AKZHYS4DL/IMG_0093.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616337445433-0CBMQ812Y515HIY0OOQR/IMG_0095.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616337453141-90WQFXI3UVFAU5L3GQY1/IMG_0094.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616337455320-M8HDKMVI1INJCC5BS3RT/IMG_0111.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616337552586-LDWCWH5QO3S8ECY39UYA/IMG_0108.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616337587675-98ZRSKV1M6CH863GZDC8/IMG_0100.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616973244980-SY186H75EHT9EA9CPFBD/IMG_0104.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616973269154-A9UW1CZ1NSSHABA6BK8V/IMG_0118.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616973293806-JAQY9AZVAPYONUBQBSOT/IMG_0124.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616973295232-9T699XPHODTOF47FAWGW/mum+2.jpg Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616973314396-TUCV4M988MVU1CSO0PWG/IMG_0132.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616973335858-K51S3UC8Q0DQUALEGRZF/IMG_0120.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616339386016-DR725KW47LUVYSOCNZ6A/IMG_0138.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616339378529-CDB8EDD9I5URGLDLFDRZ/IMG_0140.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616339395675-7PWBON8ACVGNEW03UTDD/IMG_0143.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616339399448-F74G6QQ9Z9XO1XJLSLG7/IMG_0145.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616339412837-OZ8NUJ8YCZVB1OTORELN/IMG_0146.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616339422697-8X0GYPJ3KJN6D3Z4I8VL/IMG_0147.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616339430413-5X5T0LPYBKD582CUVGO7/IMG_0148.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616339443697-H5K05X2NY2K01NH4FWF1/IMG_0154.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616339448382-FQPLJWYNG27AVVIJBLZH/IMG_0158.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616339460028-E5BBMFLN9DENRA5FXIN5/IMG_0162.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340115738-YJCV329O63Q4FZZA9EQG/IMG_0167.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340142624-202FYRJGSQ2NH2NBPPIJ/IMG_0172.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340143298-JVGQ5FNO7LONY6HWDVXV/IMG_0175.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340184689-3IUKHLDTKAJJJVT01PC3/IMG_0178.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340162218-52M7G17TB2EQYMRMX0RG/IMG_0179.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340176667-913TY3MAN28QN9LRD1BL/IMG_0180.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340207239-6EE41VORPANCHB6KQORW/IMG_0181.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340218678-8MGBLIGKLZQRQQU15VOW/IMG_0182.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340230714-ZF91R46FHN3U2YXEZW48/IMG_0187.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340235149-NGH91HG0WQ257ASJR5XZ/IMG_0196.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340265822-QL0B3ICVHPVFYN0ZPLBF/IMG_0199.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340265159-GG75JP231NE04VD0713J/IMG_0200.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340519339-E4A8HPI1B6SUTFLQZNI4/IMG_0202.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340537775-HV9KVE0MOGJML7WRJ0AH/IMG_0206.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340550684-S8R78URGQYSRRIFL0QEF/IMG_0208.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340562095-RYUUCAZDEBICQ72N3KCT/IMG_0209.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340576681-J24Z0CQ5Y0ZFGQ7SNP5W/IMG_0210.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340575302-KND7Q75S2C8I1O03ZSE7/IMG_0211.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340587170-AV5IF1HAO0R4CQHUP0UW/IMG_0218.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340585139-OMYRFF3JZD0PSPWF3YOL/IMG_0221.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616973047185-NKDUCBIV668TP62T8L5B/dad+2.jpg Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616340591167-M6SLAGXJCSN5A68B3QSC/IMG_0222.JPG Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616973053624-VY0GE3O0YHV4EDVEO9I6/Dad.jpg Blog - Walk 2020, 130 Miles 5 Days https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616973065388-G1BI6V88PENCXSZ1V861/Mum.jpg Blog - Walk 2020, 130 Miles 5 Days https://www.hdlivin.org.uk/blog/blog-post-one-ak7pc monthly 0.5 2021-03-28 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616004757346-0UM3O16EY4NGUOW1HGRM/Room.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616004762278-EGLUAYW4YGZEV3ERYETC/centerpiece.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616337742519-UIFBRT5HSP9HC9A43SLA/624D628C-11DF-4BE3-9F3C-FF187EBD1008.jpeg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616005908316-I3ARLCO19QYACD5HG40J/banners.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616336979699-ASI4RIAJ6GQIZ30TJBBN/53E66B86-7265-43FA-A55E-B631E739C141.jpeg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616367641057-67PC0LNA3S1YFMYBITGE/party.jpg Blog - 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HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616006619934-33NHGKZ6I87CZQ0OI5BH/golf.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616006649150-OGXD6J0YCVDFTXZXG7E0/air+b%26b.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616006657717-QSV5NP18YQIWCA7NTTIM/boxing+glove.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616006677471-J5Q2VCTGSQ4M2S6L7ZHP/vospers.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007434723-BPFKYML2F1V8VHPAVJSD/1.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007444062-DC2558DGH9ULV2FAJU3Q/2.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007455394-619X8P4QDTCUWYO2K7WL/3.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616369228700-Q1AEI3THXJTPF1460BD3/launch.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616369243210-RUNURDCY2TQBB3KT8H4X/launch+1.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007595405-ZPF9RJ8SAK6VCP3MK5NJ/6.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007599800-1SJGP5EIK6T0XR9YOLXU/7.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007605645-L89ESG2DHJ496GGKFG6S/8.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007661673-JGJMNUQE6AY0ZOV3JKGC/9.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007669014-USETTX5J52DY7JPI82QY/10.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007832774-CYIW02U0324RZMTKPQHY/11.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007963049-1MI6LKIW6U34CDDHZE2A/12.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007964756-VGGVPPJ79HMS650VTHGL/13.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007967733-DKC4C11691YLCPNQJMBQ/14.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007969554-I1XEA93NOIAOVSAT5ARB/15.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007972325-1WY47M61KFK9VBZ73MJJ/16.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616007977680-I79ULDVA945G4HOMBGAK/17.jpg Blog - HD Livin’ Launch Party https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616008005567-CZYP50UOD0QSUF2S89JO/18.jpg Blog - HD Livin’ Launch Party https://www.hdlivin.org.uk/home daily 1.0 2024-01-15 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1615930164075-2844HX4327X4Y7PRKE6E/_86157909_c0239795-brain_in_huntington_s_disease%2C_mri-spl.jpg Home - What is Huntington’s Disease? A curse that makes family and friends watch a loved one slowly change into someone they’re not, an angry drunk, a happy drunk, a confused drunk and a sleepy drunk without a drop of alcohol. Then when the disease decides it’s time, it takes their ability to walk, to talk and to eat before it takes them once and for all. https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1615931233737-UINCR4MDYP3G9I1QHCNY/90143901_197323111685218_7237801990124732416_n.jpg Home - Fundraising Events Come and join us at one of our upcoming events or let us know if you want to hold an event to raise money for HD Livin’. https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616343130296-20N84NAAALRUCPNBW9FP/Hub.jpg Home - Our Projects While we raise the money to build the respite centres we are looking to start our Hub’s to help support those impacted. https://www.hdlivin.org.uk/our-team daily 0.75 2024-01-15 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1614601474939-PI09TS6U0Z3WO4GLY9B0/68C4476D-05C0-4351-BFA7-00653DD632FD.jpeg Our Team - Anthony Lomas - Founder & Chairman https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1615930268664-SOB1K59LGJPPZY7QYK1V/IMG-7296.PNG Our Team - Ian McCarthy - Trustee https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616962994688-PD57HB264JCW4BTXD9VF/IMG_9198.JPG Our Team - Miles Monaghan - Trustee https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1614267093346-MH8ISLRBOOQL3X83ZBXS/IMG_0252.jpg Our Team - Gill Lomas - Treasurer https://www.hdlivin.org.uk/hub daily 0.75 2021-04-08 https://www.hdlivin.org.uk/donate daily 0.75 2021-03-24 https://www.hdlivin.org.uk/our-vision daily 0.75 2022-05-26 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/120b9262-1313-4fd3-ae88-0984e9d19e68/HD+Living-17-2+Header.jpg Our Vision - Why we are here ? It all begins with an idea, and a need born out of experiences, some good and some not so good. When life throws you so many curveballs, it sometimes feels that you just can’t cope anymore and just want it all to stop. But you know you can’t stop, so you just soldier on. But it doesn’t need to be like this. We firmly believe that with suitable custom-made respite care, we can cope with the difficulties this cruel disease presents. Both carers and sufferers just need time to recharge, rest, and recuperate, so they are more able to enjoy that precious time you have with each other. HD Livin’ aims to provide that Respite Care. https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1614028911386-R4MFU37PFVJ4N46S0DH6/Hub.jpg Our Vision - HD Livin’ Hub A meeting place with a safe, friendly warm environment where anyone impacted by HD can meet others that have been impacted by this terrible illness. We can support each other through the many challenges that come with HD and share our experiences to help others. We will also hold open days where professionals such as Doctors, Nurses, Carers, Occupational Therapists, Speech and language therapists, Dietitians, Researchers and other charities that work with HD sufferers can give talks and be available to answer questions and give advice. https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1614026946914-OHR4DLG0TAN4XOX1PO7E/Bungalow.jpg Our Vision - HD Livin’ Respite Centres A respite centre that provides 1-2-1 specialist care for people with Huntington’s Disease. A centre that feels more like a home, that can be booked in advance and has everything that is required to make the patients stay as stress free and enjoyable as possible. Giving the carers peace of mind their loved one is being well looked after so they can enjoy their well earned rest. https://www.hdlivin.org.uk/what-is-hd daily 0.75 2021-04-08 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616341754496-BUF9PX8IQ0U63AFTN6U2/unsplash-image-yqLsYiuQgwo.jpg What is HD? - Symptoms Symptoms of Huntington's Disease usually develop between ages 30 and 50, but they can appear as early as age 2 or as late as 80. The hallmark symptom of Huntington's Disease is uncontrolled movement of the arms, legs, head, face and upper body. Huntington's disease also causes a decline in thinking and reasoning skills, including memory, concentration, judgment, and ability to plan and organise. Huntington's disease brain changes lead to alterations in mood, especially depression, anxiety, and uncharacteristic anger and irritability. Another common symptom is obsessive-compulsive behaviour, leading a person to repeat the same question or activity over and over. https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616341804806-GRP59WN9WHHV86PGJ62Y/unsplash-image-M9EctVUPrp4.jpg What is HD? - The Need for Care There is currently no cure for Huntington's Disease and no way to slow or stop the brain changes it causes. This means after symptoms start they get progressively worse until the sufferer is unable to care for themselves and requires full time care. This more often than not is taken on by a spouse, sibling, son, daughter or other family member. Caring for someone with HD is 24/7 and extremely tiring, as we have witnessed first hand in our family and many others. https://www.hdlivin.org.uk/5-stages-of-hd daily 0.75 2021-03-28 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616958732043-6K1CHKIGFMBSAK73RJ3T/unsplash-image-HnWQciYQLlg.jpg 5 Stages of HD - HD Stage 1: Preclinical stage The preclinical stage is when mild symptoms start appearing, but the doctor has not diagnosed the person to have Huntington’s disease (HD). Symptoms of HD most commonly start between 40 and 60 years of life, but they can appear as early as 2 years or as late as 80 years. The affected person can usually carry all their day-to-day work without requiring any assistance. Mood problems may appear at this stage. https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616958791147-Z5LJGO2S8DLH2MMR93MK/unsplash-image-OqQi3nCt4CA.jpg 5 Stages of HD - HD Stage 2: Early stage The symptoms become noticeable enough to arrive at the diagnosis of Huntington’s disease (HD).There may be twitches or slight tremors in the hands or face, which may be missed as nervous tremors. Although people with HD carry most of their daily activities, some activities do require tremors help from people around them. The affected people can usually go or drive to work by themselves. There may be trouble in eating and sleeping. Thinking becomes difficult for some tasks that appeared simple earlier. The person grapples with depression, anxiety, and irritability. https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616958852581-2S2UAOCAFUKNHR8ICKCN/unsplash-image-oZu6mNLGJrU.jpg 5 Stages of HD - HD Stage 3: Middle stage At this stage, people with Huntington’s disease (HD) are unable to carry most of the activities on their own. Substantial help is needed from the people around in activities involving domestic and financial chores. People start experiencing difficulty in swallowing, and slurring of speech may be noticed. They might experience difficulty in walking and maintaining balance. There is drastically worsening in the thinking ability of the affected person. The person might experience difficulty in learning new things and remembering information. Depression and irritability become evident at this stage. Sex drive or performance may be reduced. https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616958930323-N6ENQJWDYFTQDAKLNUG6/unsplash-image-nSFgnhssp8I.jpg 5 Stages of HD - HD Stage 4: Late stage By this stage, people with Huntington’s disease (HD) require assistance in all areas of life and become bedridden. Movements become extremely slow and rigid. They are unable to convey what they feel because of speech impairment. The inability to swallow necessitates the use of a feeding tube that is inserted surgically into the stomach. People may become constipated or have trouble urinating. Extreme difficulty in falling asleep or staying asleep is experienced. https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1616958993232-Z7H5V2X3IRYOCVA955GS/unsplash-image-M40oeDRSgcI.jpg 5 Stages of HD - HD Stage 5: End-of-life stage The end-of-life stage is when patients become confined to the bed completely and dependent on others for all their activities. They need help to live the last few months or years of their lives peacefully and in the best way, they can. Patients may choose whether to spend their last moments in a hospital or at a familiar place such as their home. Patients with Huntington’s disease (HD) usually live for anywhere between 10 and 20 years after the symptoms first appear. The cause of death usually is a complication of HD, such as pneumonia. Pneumonia in such patients results from aspiration of food into the lungs. Doctors may refer to only the three stages of HD, namely, early, middle, and late for the ease of explaining to the patients. How early the stages begin and how severe are the symptoms differ among patients with HD. These differences have been linked to variations in genetic mutation causing HD. https://www.hdlivin.org.uk/news daily 0.75 2022-01-29 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1f2e55c1-dfac-4c9a-9bcb-d0629c979495/golf.jpg News Creating Respite for People living with Huntington’s Disease https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/06aa2b36-620b-407f-aa97-f601ea3ac83e/IMG_4114.jpg News https://www.hdlivin.org.uk/fundraisingevents daily 0.75 2026-02-19 https://www.hdlivin.org.uk/fundraisingevents/annual-dinner-dance-2022 monthly 0.5 2026-02-19 https://www.hdlivin.org.uk/fundraisingevents/skydive2022 monthly 0.5 2024-04-12 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/b734349c-836c-4a78-bbd8-605c2f741491/skydive.jpg Fundraising/Events - Skydive Sunday 28th July 2024 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1622543847599-P5FKLOZ1C7XFOB0DMXVY/unsplash-image-SpN_Jiv3txk.jpg Fundraising/Events - Skydive Sunday 28th July 2024 https://images.squarespace-cdn.com/content/v1/5f72f248bb9f881a45c07607/1622543877454-T0LXCT0IDLMITOIAFCDH/unsplash-image-6O853OGeq-c.jpg Fundraising/Events - Skydive Sunday 28th July 2024 https://www.hdlivin.org.uk/fundraisingevents/charity-golf-2023 monthly 0.5 2024-11-26 https://www.hdlivin.org.uk/portfolio-1 daily 0.75 2022-05-17 https://www.hdlivin.org.uk/portfolio-1/project-six-5sfbk monthly 0.5 2020-05-20 https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847359798-BCTJTJAS19PV54HL6VPM/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Six https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847359057-HKZQQP8MCEM0UI23R57B/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Six https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847357814-SZ205VXUQGAN268M8A18/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Six https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847356915-2V61708SR7M0A8IBEJLE/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Six https://www.hdlivin.org.uk/portfolio-1/project-five-nade4 monthly 0.5 2022-03-25 https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847350665-9UOIWAR5X24UBW83TJJO/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Five https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847351213-Z61O7XETZM827W8NSG74/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Five https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847350097-XM9U6QFAY9KBBLO1AZSP/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Five https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847349536-9B5S5JDU6CTTOIHYQPE7/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Five https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847349032-KE99W4O3PP9147GHRC10/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Five https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847348472-8QESU05NL485EPY8X8XO/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Five https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847347954-P3IYHJRVJDA9HIJAOIYW/20140301_Trade-151_0124-copy.jpg Photo Galleries - Project Five https://www.hdlivin.org.uk/portfolio-1/project-four-7nfcr monthly 0.5 2022-03-25 https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847904251-HVHUK3T1H2QCY05DRHU3/image-asset.jpeg Photo Galleries - Project Four - Make it stand out. It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847904480-AXE2TZ6WH1YWOYJELYQQ/image-asset.jpeg Photo Galleries - Project Four - Make it stand out. It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. Or maybe you have a creative project to share with the world. Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847904674-UXDT58LZUDAEN1C4LIKQ/image-asset.jpeg Photo Galleries - Project Four - Make it stand out. It all begins with an idea. Maybe you want to launch a business. Maybe you want to turn a hobby into something more. 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