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“A curse that makes family and friends watch a loved one slowly change into someone they’re not, an angry drunk, a happy drunk, a confused drunk and a sleepy drunk without a drop of alcohol. Then when the disease decides it’s time, it takes their ability to walk, to talk and to eat before it takes them once and for all”

— Anthony Lomas Chairman and founder of HD Livin

We Support Those Impacted by:

  • Huntington Disease (HD)

    What is Huntington’s Disease?

    Huntington’s disease (HD) is a genetic condition that affects the brain. It can cause changes in movement, thinking, emotions, and behaviour. HD is a progressive condition, which means that symptoms can change and develop over time.

    Everyone’s experience of HD is different. It can affect the person living with the condition as well as their partners, family members, and carers.

    Learn more

  • Motor Neurone Disease (MND)

    What is Motor Neurone Disease?

    Motor neurone disease (MND) is a condition that affects the nerves responsible for controlling movement, speech, swallowing, and breathing. MND is progressive, which means that symptoms can change and develop over time.

    Everyone’s experience of MND is different. It can affect the person living with the condition as well as their partners, family members, and carers.

    Learn more

  • Parkinson’s Disease

    What is Parkinson’s Disease?

    Parkinson’s disease is a condition that affects the brain and can cause changes in movement. It can also affect sleep, mood, thinking, and other aspects of everyday life. Parkinson’s is a progressive condition, which means that symptoms can change and develop over time.

    Everyone’s experience of Parkinson’s is different. It can affect the person living with the condition as well as their partners, family members, and carers.

    Learn more

  • Dementia

    What is Dementia?

    Dementia is a term used to describe a range of symptoms that affect memory, thinking, communication, and everyday life. There are different types of dementia, and each person’s experience can be different.

    Dementia can affect the person living with the condition as well as their partners, family members, and carers. It can bring changes and challenges over time, and support can make a positive difference.

    Learn more
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The Need for Care

There is currently no cure! No way to completely stop the brain changes it causes. This means after symptoms start they get progressively worse until the sufferer is unable to care for themselves and requires full time care.

This more often than not is taken on by a spouse, sibling, son, daughter or other family member. Caring for someone with any neurological disease is 24/7 and extremely tiring. At HD Livin’, our long term plan is to create specialist respite centres to support the whole family, across the UK.